My name is Becky and I am writing a blog about growing up with a rare genetic disorder. I have what is called 18p-. I am in college, doing sports, and acting as a cub scout leader.
Monday, 18 November 2013
Highschool graduation ceremony
On Friday October 25 I went back to my old high school to graduate. During the day I helped clean the house. For supper on that night I had a hotdog. My mom and my grandma took me to the school so I could get ready and they could save seats. Then at 7:30pm the ceremony started and after waiting for a little I got my diploma. Which was neat. When everyone was finished we did the big graduating tradition where everyone moved their tassel from the right to the left which was cool. Then we headed to the cafeteria to have a snack and refreshments. I visited with two amazing teacher who helped me survive high school and I got to see a couple of my old friends too. My tutor also came to graduation ceremony which was cool. I have had the same tutor since grade one. One of my psychologists said that I would not have been able to read without all the work my tutor did with me. Then after a couple of pictures we drove home and had a party with our neighbours and friends. We had pizza which was Hawian, Canadian and a tomato free pizza (for Sarah). For dessert we had a marble slab Rolo icecream cake. Which was delicious and the gathering was fun. Thanks to everyone who came to celebrate with us. Also thanks to everyone who helped me to get through school and graduate. I will add some photos later but thought I should post this.
Friday, 1 November 2013
Rough Beginning - College essay
Rough Beginning
I have seen so many people that have a more fair life than myself. For example, most people never have to the hospital ,or have teachers that actually believed in them. Compared to many people, my life as treated me unfairly, especially due to attitude of doctors, teachers and also because I have a rare genetic disorders.
First throughout my life, I have had some good doctors who believe in me and other who thought I would not make it. For example in grade 3 I had to go to physiologist who told my family and me that I wouldn't make it pass grade four level. This affected my family badly because they knew it wasn't true. Another thing that was unlucky for me was going to a speech therapist to learn different letter sounds. For example when I was younger I would make the k sound like a T so I would call myself Betty instead of Becky. The last reason why I believe life has treated me unfairly is this: when I was younger, I had to have needles every single night. These needles will help me grow physically and mentally. I felt very lonely because I was the only person to have them.
The second reason why I think life as treated me unfairly is that some teachers didn't care about me. First some teachers thought I was not capable of anything, and never gave me a chance to show what I was capable of. For instance in grade ten cooking class, a certain teacher would make me wash the dishes instead of cooking. In addition I have had a couple of teachers who underestimated my learning skills. In grade 8, for example, my music teacher thought I would never be able to do anything music related. Thirdly some teachers didn't know me at all. When I was in grade seven, the special education teacher tried to put me in the life skills classroom without letting me graduate with my friends in grade 8. In addition another example of this poor treatment was my grade 8 English teacher who thought I was scared of speaking in front of the class. Even though I have done it many times. Throughout my experience in elementary and secondary school, I had teachers who didn't know me well, and other who didn't want to waste their time to know me. I felt like I was alienated by someone who was supposed to show support for my learning.
The final reason why I believe life as treated me unfairly is because I have a rare genetic disorder. Due to this I have had lots of surgeries. Some were major like heart, bowel ,and eye surgeries, and others were minor treatments like dental work. What hurts the most is that some ignorant people won't even accept disabilities that they can't see. For example, when I go to Disney's Magic kingdom park most people look at me in a weird way for having a disability pass. Indeed some people just don't want to learn anything about me. For example, when I told my grade 8 music teacher that I was different she just kept ignoring me.
To conclude, doctors, teachers, and people who have treated me unfairly by ignoring me or not showing support because of my genetic disorder. Even though I have had all these unfair events in my life, it makes me realize that those events made me who I am today, and I am proud of that ! I have learned that I need to work hard to achieve success. I have also learned the importance of standing up for myself to become my own self-advocate. Most importantly, I have learned to be thankful for these teachers, doctors, friend and family who have believed in me and supported me for who I am.
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